WORK PACKAGE 4 - Information on epidemiology of rare cancers

This WP will develop information on the health care pathway of patients with rare cancers and will update the epidemiological indicators (incidence, prevalence and survival) for all rare cancers of the RARECARE list

Istituto Superiore di Sanità

Riccardo Capocaccia

Sandra Mallone

Fondazione IRCCS, Istituto Nazionale dei Tumori , Italy

Gemma Gatta

Annalisa Trama

Lisa Licitra

Integraal Kankercentrum Nederland

Sabine Siesling

Otto Visser

Jan Maarten  van der Zwan

Rare Cancers Europe

Paolo Casali

European Society of Surgical Oncology

Sandro Sandrucci

European School of Oncology

Fedro Peccatori

European Society for Radiotherapy and Oncology

Daniel Zips

European Society for Medical Oncology

Francesca Longo

Surveillance of Cancers in Europe

Franco Berrino

National Oncology Hospital, Bulgaria

Nadya Dimitrova

Finnish Cancer Registry - Institute for Statistical and Epidemiological Cancer Research.

Eero Pukkala

Institute of Oncology Ljubljana

Maja Primic Žakelj

National Cancer Registry Ireland

Harry Comber