WORK PACKAGE  7 -  Information for patients with rare cancers

This WP will produce information about rare cancers (including patients organizations dedicated to rare cancers, list of centres of expertise, etc) in formats adapted to patients need.

European Cancer Patient Coalition

Francesco De Lorenzo

Kalliopi Anna Christoforidi

Fondazione IRCCS, Istituto Nazionale dei Tumori , Italy

Gemma Gatta

Annalisa Trama

Lisa Licitra

Istituto Superiore di Sanita’

Riccardo Capocaccia

Sandra Mallone

The University of Edinburgh

Ian Kunkler

Integraal Kankercentrum Nederland

 Sabine Siesling

Otto Visser

Jan Maarten  van der Zwan

Rare Cancers Europe

Paolo Casali

European School of Oncology

Fedro Peccatori

Leukemia Patient Advocates Foundation

Jan Geissler