RARECARENet is a scientific research programme on rare cancers in Europe.

Cancer specialists and other scientists are involved, but RARECARENet is not a clinical trial and the researchers involved are not in a position to provide medical advice to cancer patients: for such advice you should contact your doctor or the relevant medical organization in your own country. If you cannot find the information you need, a cancer patient group in your country may be able to help you locate a specialist in rare cancers or a specialized treatment centre. To identify relevant patient groups, please consult the membership list of the European Cancer Patient Coalition or contact the Coalition directly at

If you have a general enquiry please send us an email using our online form.


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