info RareCancers 

This page presents clinical information on rare cancers, contributed by State-of-the-Art Oncology in Europe (START), European Society for Medical Oncology (ESMO) and epidemiological data from the project, Surveillance of Rare Cancers in Europe.

START is an evidence based European 'information support' of current clinical approaches to human Tumours.

Clinical Practice Guidelines (CPG) of ESMO are intended to provide oncology professionals with a set of recommendations for the best standards of cancer care, based on the findings of evidence-based medicine.

RARECARE was the first project on rare cancers and provided a definition of rare cancer, a list of cancers and epidemiological indicators of incidence, survival and prevalence based on population based cancer registries Burden indicators were provided for 186 rare cancers and these information were mainly published in a series of article in the European Journal of Cancer. 

For more information contact us.

Select your topic of interest by selecting an item from the menu below.


HAEMATOLOGICAL MALIGNANCIES


Adult acute lymphoblastic leukaemia (ALL)

START, Clinical information 

Adult acute myeloid leukaemia (AML)

START, Clinical information
for the "START, Laymen’s information in Italian", see the section "Information for Patients"
ESMO, Clinical Practice Guidelines  
for the "ESMO, Patient's information", see the section "Information for Patients"
EJC, Incidence, Prevalence, Survival

Chronic myeloid leukemia

ESMO, Clinical Practice Guidelines 
for the "ESMO, Patient's information", see the section "Information for Patients"
EJC, Incidence, Prevalence, Survival

Chronic lymphocytic leukemia

START, Clinical information  Updated January 2015

for the "START, Laymen’s information", see the section "Information for Patients" Updated July 2015

ESMO, Clinical Practice Guidelines

Lymphoplasmacytic lymphoma - Waldenstrom's magroglobulinemia

START, Clinical information Updated July 2016

Marginal-zone lymphoma

START, Clinical information


Diffuse large B-cell lymphoma (DLBCL)

START, Clinical information Updated July 2016
ESMO, Clinical Practice Guidelines

Anaplastic large cell (CD30+) lymphoma

START, Clinical information

Angioimmunoblastic T-cell lymphoma

START, Clinical information
Esmo, Clinical information

Entheropathy-associated T-cell lymphoma (EATL)

START, Clinical information

Intestinal T-cell lymphoma

START, Clinical information

Lymphoblastic lymphoma

START, Clinical information

Peripheral T-cell lymphoma - not otherwise specified

START, Clinical information

Mycosis Fungoides

START, Clinical information

Hodgkin's lymphoma

for the "START, Laymen’s information in Italian", see the section "Information for Patients"
ESMO, Clinical Practice Guidelines

Langerhans cell histiocytosis

START, Clinical information Updated January 2015 
for the "START, Laymen’s information", see the section "Information for Patients" Updated May 2015 
EJC, Incidence, Prevalence, Survival


CENTRAL NERVOUS SYSTEM


Oligodendroglioma

EJC, Incidence, Prevalence, Survival

START, Clinical information Updated April 2016  

Neuroectodermal tumours of posterior fossa and of supratentorial sites (Medulloblastoma)

EJC, Incidence, Prevalence, Survival


Primary central nervous system lymphoma

START, Clinical information Updated June 2016


Anaplastic astrocytoma in adults

START, Clinical information Updated April 2016 
EJC, Incidence, Prevalence, Survival


Glioblastoma multiforme

START, Clinical information Updated April 2016 


Low-grade astrocytoma

START, Clinical information  Updated April 2016


High-grade malignant glioma

START, Clinical information Updated April 2016 
ESMO, Clinical Practice Guidelines



DIGESTIVE SYSTEM

Cancer of the anal canal

START, Clinical information
for the "START, Laymen's information in italian", see the section "Information for Patients"
Esmo, Clinical Practice Guidelines
EJC, Incidence, Prevalence, Survival

Cholangiocarcinoma

START, Clinical information  Updated July 2015 
for the "START, Laymen's information", see the section "Information for Patients"  Updated December 2015


Esophageal Cancer

START, Clinical information

for the "START, Laymen's information in italian", see the section "Information for Patients"

for the "ESMO, Patient's information", see the section "Information for Patients"

Hepatocellular carcinoma

START, Clinical information
for the "START, Laymen’s information in Italian", see the section "Information for Patients"
for the "ESMO, Patient's information", see the section "Information for Patients"

Pancreatic cancer

START, Clinical information Updated January 2016 
for the "START, Laymen's information in italian", see the section "Information for Patient"
for the "ESMO, patient's information", see the section "Information for Patients"

Small Bowel cancer

START, Clinical information Updated April 2016 


MALE GENITAL


Cancer of the penis

START, Clinical information Updated January 2016
for the "START, Laymen’s information in Italian", see the section "Information for Patients"
EJC, Incidence, Prevalence, Survival

Germ-cell tumours of the testis

START, Clinical information Updated January 2016
for the "START, Laymen’s information in Italian", see the section "Information for Patients" Updated June 2016
ESMO, Clinical Practice Guidelines
ESMO, Clinical Practice Guidelines
EJC, Incidence, Prevalence, Survival 


FEMALE GENITAL


Non-epithelial ovarian cancer

ESMO, Clinical Practice Guidelines


HEAD AND NECK


Cancer of nasopharynx

START, Clinical information
for the "START, Laymen’s information in Italian", see the section "Information for Patients"
ESMO, Clinical Practice Guidelines
EJC, Incidence, Prevalence, Survival 

Paranasal sinus cancer

START, Clinical information   Updated February 2015 

for the "START, Laymen’s information", see the section "Information for Patients" Updated June 2015


Major and minor salivary gland tumours

START, Clinical information Updated August 2016
for the "START, Laymen’s information in Italian", see the section "Information for Patients"
EJC, Incidence, Prevalence, Survival 

Oral cavity cancer

START, clinical information Updated December 2015

Mucosal melanoma of the head and neck

START, Clinical information Updated May 2016

Squamous cell carcinoma of the head and neck

Esmo, Clinical Practice Guidelines
EJC, Incidence, Prevalence, Survival

ENDOCRINE


Thyroid cancer

START, Clinical information Updated April 2016
for the "START, Laymen's information in italian", see the section "Information for Patients"
ESMO, Clinical Practice Guideline 
EJC, Incidence, Prevalence, Survival 

Adrenal cancer

ESMO, Clinical Practice Guidelines 
EJC, Incidence, Prevalence, Survival 


THORACIC


Trachea and thymus epidemiological information

EJC, Incidence, Prevalence, Survival

Thymoma

START, clinical information  Updated February 2015

for the "START, Laymen's information", see the section "Information for Patients" Updated April 2015



EMBRYONAL TUMOURS


Wilm's Tumor

START, Clinical information Updated June 2015 
for the "START, Laymen’s information in Italian", see the section "Information for Patients" Updated October 2015

Childhood Medulloblastoma

START, Clinical information Updated August 2015 

for the "START, Laymen’s information", see the section "Information for Patients" Updated December 2015

Neuroblastoma

START, Clinical information  Updated August 2015
for the "START, Laymen’s information", see the section "Information for Patients" Updated February 2016
EJC, Incidence, Prevalence, Survival


SARCOMAS


Gastrointestinal stromal tumours

ESMO, Clinical Practice Guidelines
START, Clinical informations Updated June 2014
for the "START, Laymen’s information", see the section "Information for Patients"  Updated November 2014


NEUROENDOCRINE TUMORS (NET)

ESMO, Clinical Practice Guidelines
ESMO, Clinical Practice Guidelines 
ENET 
EJC, Incidence, Prevalence, Survival